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COVID-19: Equality and Human Rights impact & resources

COVID-19: Equality & Human Rights Impact & Resources

‘We are not all in the same boat. We are all in the same storm.’
- Damien Barr
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This pandemic continues to expose inequalities in our society. Whilst the virus is indiscriminate the impact is certainly felt differently by people. This is my attempt to notice, document and highlight these inequalities, and keep asking:
  • - Why is this happening? 
  • - What can I / we do about it?
This is a resource and support for anyone with an interest in equality, diversity and inclusion. It may be of particular value to you if you: 
- Have lived experience of inequalities
- Are researching equality impact
- Providing health and care support
- Supporting communities

It brings together insight and resources from a wide range of sources, but in particular draws on the amazing collaboration in the Yorkshire & Humber NHS Equality & Diversity Leads Network - thank you! In this time where we can't physically join our hands together, we are certainly joining our spirits and collective insight together.

While every effort is being made to properly acknowledge sources and keep things accurate and up to date, please get in touch if you have something to query or contribute. 

(Page currently under construction, last updated  November 2022)

Needs and issues

Understanding needs

Evidence and issues: 


People with learning disabilities are up to 6 times more likely to die from coronavirus. 


A report from Public Health England (PHE) found that 451 in every 100,000 people registered as having learning disabilities died after contracting Covid-19 in the first wave of the pandemic, when the figures were adjusted for age and sex.


Head of policy at learning disability charity Mencap, Dan Scorer:

“The government has failed to protect some of our most vulnerable citizens. Decades of underinvestment in social care has left most people with a learning disability with no support to understand ever-changing guidance on staying safe and accessing testing." 


Prof John Newton, PHE’s director of health improvement: 

“It is deeply troubling that one of the most vulnerable groups in our society suffered so much during the first wave of the pandemic. We must do everything possible to prevent this happening again.”


People with sensory loss face extra barriers to accessing healthcare which can put them at risk of missing out on the care they need, and avoidable death. In addition, due to the increased risk of adverse outcomes from respiratory conditions for many disabled people, they may be more likely to need to access healthcare services. 


Many disabled people with are not being identified on the vulnerable/shielded list, however they have health conditions and access requirements that make going to shops to get supplies particularly challenging with social distancing measures. This has a health element in terms of picking up prescriptions, but also the physical and mental toll of navigating getting essential supplies is taking a toll. This recent Guardian article sets this out powerfully.  


People with Hearing Loss

People with hearing loss can’t lip-read when staff members are wearing masks. 


Deaf People

Government advice in British Sign Language has not been published on government / NHS websites.  Some countries (including Scotland) have sign language interpretation as part of their regular televised briefings but not in England.


The Deaf community may not pick up  public health messages until sometime after the general population due to missing out on the detail that is often passed on through verbal communication.


People with learning disabilities and autism 

Government advice was published in Plain English but this format is not accessible to many people with learning disabilities. It was only published in Easy Read several days later.  


Initial guidance issued by NICE at the start of the outbreak stated that people with autism and learning disabilities would score high on a frailty index and therefore be less likely to receive critical care if services became overwhelmed.  


Providers of services to people with learning disabilities have told the HSJ that they are still receiving unlawful DNAR orders for people with learning disabilities.



UN HUMAN RIGHTS 

The Special Rapporteur on the Rights of Persons with Disabilities published this guidance to address the rights of disabled people: 

Disability Inclusion  Social  Protection 

Response to COVID-1


Disability considerations during the COVID-19

outbreak






Issues

Evidence of inequalities based on race and naitonality:


Black And Asian People ‘Up To Twice As Likely To Be Infected With Coronavirus’ 

The analysis, published in the EClinical Medicine by The Lancet, is based on pooled data from more than 18 million people who had taken part in 50 studies in the UK and US.


"The study comes days after the government faced questions over why those from BAME backgrounds are not mentioned on the vaccine priority list".



The disproportionate impact on people of colour is devastating. COVID has surfaced and highlighted pre-existing inequalities. This was rapidly evidenced by the Hidden in Plain Sight report, highlightng these inequalities:

"ï‚· Overrepresentation of BAME populations in lower socio-economic groups.

ï‚· multi-family and multi-generational household leading to increased risk of transmission

due to the lockdown.

ï‚· disproportionate employment in lower band key worker roles who either work in high

exposure care environments or are unable to implement safe social distancing due to

their roles.

ï‚· co-morbidity exposure risks especially for CVD, diabetes, renal conditions and complex

multi-morbidities in ICU.

ï‚· Increased health and care setting COVID-19 exposure risks. "


The British Medical Association (BMA) reports on the disproportionate impact of COVID on Black, Asian and minority ethnic NHS staff.


Public Health England published an inital report in June highlighting the Disparities in the risk and outcomes of COVID-19. However, this was not a complete analysis, as the key recomendations were not included in this publication by the UK Government. Shortly afterwards,  a follow up Public Health England report: Beyond the data: Understanding the impact of COVID-19 on BAME groups includes stakeholder views and key recomendations.


The King's Fund highlights initial evidence in the UK and US of higher COVID related mortality rates for black and minority ethnic (BAME) people. Whilst UK mortality data must be analysed to factor the demographics of the higher populated areas like London, which have higher mortality rates at the moment. However, the data raises some stark questions, particularly the high of BAME NHS staff mortality (60% of staff who are known to have died from COVID are BAME, but only make up 20% of NHS staff). The King's Fund is calling for a review to answer the following questions:


1. Why are people from ethnic minorities disproportionately affected by Covid-19 

 2. What will we do about it?


The article highlights what NHS staff and leaders can commit to make a postive difference

 

Understanding need

Issues:


  • Health inequalities:

Global data appears to show that men are more likely to need critical care if they have COVID-19 and more likely to die.


  • Gender based violence

In times of crisis and natural disasters, there is a documented rise in domestic abuse[1]. As normal life shuts down, victims – who are usually women – can be exposed to abusers for long periods of time and cut off from social and institutional support.


Where to get help:

Women's Aid UK

UK Gov 

International Domestic Violence Resource Guide (2022) (hosted by Mystic Mag)


  • Economic hardship

The economic impact of the Covid-19 pandemic will very likely result in a recession in the EU. Those in precarious employment are particularly vulnerable to economic hardship. Women are more likely to be in temporary, part-time and precarious employment than men.

Even in 'non-crisis' times, family caring and housework responsibilities often fall heavily on women. Although working from home makes it more feasible to juggle many of these responsibilities, the added dimension of unplanned homeschooling is adding to this load.  On the other hand, with both parents spending more time at home, it could also be an opportunity for fathers, or same sex parents who usually work away more, to engage more in caring for their children.


"The situation for single parents can be even more difficult, especially when having to juggle working from home and caring for children alone. Single parents are also more likely to be at risk of poverty, compared to single people, or people in couples with and without children[2]. Women make up almost 85% of all single parents in the EU and almost half (48 %) are at risk of poverty or social exclusion, compared to a third (32 %) of single fathers[3]. Covid-19 is likely to increase that risk."

Understanding need

 The impact of COVID from a lens of religion and belief is deep and wide. From the experiences of people not able to wash and bury their loved ones in accordance with their beliefs to the shock of the sudden suspension of communital faith gatherings.  So many faith based groups have organised to support communities, having a huge postive impact.


The institute of Development Studies highlights its findings of the religious impact here

Resources

Description title

Lesbian, Gay, Bisexual, Trans(LGBT) people are more likely to be socially isolated, experience domestic violence, have poor mental health or substance misuse issues and therefore have a more difficult experience of lock down.  The LGBT Foundation have produced a good summary of this 


Some Trans and Non-binary people have had their HRT and medical treatment suspended.



The LGBT Foundation's report Hidden Figures "shines a light on some of the experiences of LGBT people and the very real impact that the pandemic is having on their lives. 


Understanding need

October 2020: EHRC Report: How coronavirus

has affected equality and human rights. 

Includes findings and recomendations in the areas of:

  • Work
  • Poverty
  • Education
  • Social care 
  • Justice and personal security

The Office of the High Commissioner for Human Rights - OHCHR - has produced a series of country-specific infographics based on recommendations made by treaty bodies and other human rights mechanisms that it assesses as being particularly relevant in responding to the pandemic and its consequences.

 

Here is the UK's.


The Scottish Human Rights Commission  have collated their work on human rights and COVID-19 here.  They have committed to update this page  regularly. 

Understanding needs and issues

Identifying needs of the workforce rapidly transitioning to home and remote working. What is the impact when / if staff transition back to site based working 

Resources

Inequalities and needs

There are reports of older people being pressured into agreeing a Do Not Attempt Resuscitation orders


People who live alone, are over 70 years old and have no internet access are particularly vulnerable. Local support is being provided by voluntary sector organisations and housing organisations.   


Ashton Applewhite author of This Chair Rocks blog about the pandemic exposing underlying ageism.


Whilst much of the focus has been on the impact of COVID on older people, Young Minds publlished a report highighting the impact on young people with mental health needs. The report highlights the huge toll taken on the mental health of young people, related to increased loneliness, isolation anxiety, and loss of structure and motivation.


The impact on young people has significantly increased through 2020, with confusing rules and disruption to schools. Students at universities, particularly first years in student campuses have had months of disruption, being locked in, and uncertainty. COVID  has put a magnifying glass on so many inequalities, and this is no less evident in the widening gap in terms of access to job opportunities for young people in 2020. 

This IPA blog highlights the Impact of Lockdown on Young People during the Covid-19 Outbreak.

Resources and good practice


This section brings together guidance from a range of organisations, including NHS Employers, NHS Scotland, Public Health England, the Scottish Human Right Commission and ...
Every care is being taken to keep information and links accurate and up to date, however if you spot something, or can signpost to a resource, please contact us

Communication support

Information and guidance for front line staff on accessible communication developed by the Health and Social Care Alliance Scotland. People at the Centre


Guidance from Ideas for Ears for better hearing access when people are wearing face masks 


New free British Sign Language (BSL) video-interpreting service  (but some NHS internet connections / firewalls may make this difficult to use)


Bradford based charity BTM have produced information about social distancing in BSL 

Age related resources / information

An Age UK project has volunteers working as Digital Buddies – they can provide support to people to use online services


International Longevity Centre  - think tank on the impact of longevity in the UK. Seeks to influence policy, public health and the culture of society to more postively to an aging population.


Centre for Aging Better providing information and raising awareness about the impact of COVID on older people: "On this page, we've curated some of our key content related to the coronavirus pandemic and its implications for society and those in or approaching later life.

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